Rare Strides presents CodeRare training platform to Connecticut RDAC

Beth Wynne, a registered nurse, rare-disease patient and founder of Rare Strides, presented CodeRare to the Connecticut Rare Disease Advisory Council as a free resource for patients, nonprofits, first responders and medical teams. "The mission of CodeRare is simple. We wanna empower patients and medical teams with innovative tools to tackle rare diseases," Wynne told the council.

Wynne described CodeRare features that include vetted clinical care resources, a CodeRare classroom with continuing-education opportunities, a model-of-care tool that can be used to standardize guidance for specific rare conditions, and a pathway for medical teams and first responders to earn badges and continuing education credits. She said the platform will be free to nonprofits and patients and that nonpaywalled, vetted content will be reviewed by registered nurses and updated regularly.

Wynne also described community features—patient testimonials, peer support connectors, and a 'make rare visible' challenge—and said Rare Strides plans to donate a significant share of subscription revenue from institutional subscribers back to rare-disease nonprofits. RDAC members thanked Wynne and requested she return for a longer demo at a future meeting; Wynne left contact details in the meeting notes for follow-up.